We Are The Winter People

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beatroute66
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Joined: Fri Jul 10, 2009 3:46 pm
Team Supported: Darlington
Location: Ingleby Barwick

We Are The Winter People

Post by beatroute66 » Wed Sep 22, 2021 7:44 am

Darlo fans are helping poet Jenny Rowbory raise funds for critical surgery only available in the US.

During her first year at university in 2004, she became ill with a virus that caused severe Myalgic Encephalomyelitis (inflammation of the brain and spinal cord), causing Jenny to become bed-bound and acutely ill ever since. In May 2015, after genetic testing, Jenny was also diagnosed with Ehlers-Danlos Syndrome.

This neck instability became life-threatening and Jenny had to have an operation in January 2020 to try to fuse her neck in place to save her life, as well as a decompression surgery for Chiari Malformation. Unfortunately the fusion surgery was not a success and Jenny became a lot more disabled and it’s too dangerous for her to move her neck or head at all.

The only neurosurgeon in the world who specialises in fusion (and fusion revision) surgeries and invasive bolt traction testing to determine the correct fusion position for highly complex Ehlers-Danlos Syndrome patients, is in the USA.

YOURCLUB Content recently spoke with Jenny's father, Ian Rowbory, about his daughter's illness, the fundraising and his long-term love affair with the football club.

👉🏻 https://yourclub.darlingtonfc.co.uk/yc- ... ter-people

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theoriginalfatcat
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Re: We Are The Winter People

Post by theoriginalfatcat » Fri Sep 24, 2021 10:55 am

Thanks for putting this up, I've had a read through.

BUMP.
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Feethams the Panda. 28 Jan 2012.
Now extinct!

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beatroute66
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Joined: Fri Jul 10, 2009 3:46 pm
Team Supported: Darlington
Location: Ingleby Barwick

Re: We Are The Winter People

Post by beatroute66 » Fri Sep 24, 2021 3:32 pm

Thank you. It isn't an easy read, is it.

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